EDS Syndrome: What Is Ehler's Danlos And What Are The Symptoms?

Ehler Danlos is a chronic condition that many struggle with. We wanted to take an opportunity to raise awareness of this condition that is often overlooked and difficult to receive a diagnosis for. This chronic pain condition can be eased in many ways, at Cantourage clinic, we offer specialist advice for those suffering from EDS to help patients regain control of their health and wellbeing.

What is Ehlers Danlos Syndrome?

Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissues. There are 13 different types of EDS which can affect the skin, tendons, ligaments, blood vessels, internal organs, and/or bones. The most common form of EDS is Hypermobile EDS (hEDS). Ehlers Danlos syndrome is a chronic pain condition that can often be debilitating and life-altering.

There are 13 Ehlers Danlos Syndrome Types:

  • EDS Types Chart
  • Classical EDS (cEDS)
  • Classical-like EDS (clEDS)
  • Cardiac-valvular EDS (cvEDS)
  • Vascular EDS (vEDS)
  • Hypermobile EDS
  • Arthrochalasia EDS (aEDS)
  • Dermatosparaxis EDS (dEDS)
  • Kyphoscoliotic EDS (kEDS)
  • Brittle Cornea Syndrome (BCS)
  • Spondylodysplastic EDS (spEDS)
  • Musculocontractural EDS (mcEDS)
  • Myopathic EDS (mEDS)
  • Periodontal EDS (pEDS)
  • Pathogenetic mechanisms underlying the Ehlers-Danlos syndromes

The most common Ehlers Danlos types are:

  • Hypermobile EDS (hEDS)
  • Classical EDS
  • Vascular EDS

How can Ehlers Danlos affect everyday life?

Ehlers Danlos can cause chronic pain for many of those diagnosed with the condition. This often means that everyday tasks can often be much more difficult to carry out. Symptoms can often include joint hypermobility, loose, unstable joints that dislocate easily, severe pain and extreme tiredness.

 

How to manage symptoms of Ehlers Danlos 

Symptoms can often be managed through the act of pacing. This is a technique to aid chronic pain by doing less than you are capable of doing to avoid flare ups. Often when suffering with a chronic pain condition, patients tend to overstretch themselves on good days which tends to quickly lead to a bad day of flare ups and increased symptoms. 

Gentle exercise, however much or little your body can manage is always a great way to aid chronic pain as a result of Ehlers Danlos. It is important to note that this looks different for everyone, and sometimes doing nothing is just as productive as movement.

How Cantourage Clinic could help those suffering with Ehlers Danlos?

There is no specific treatment or cure for Ehlers Danlos. However, there are ways in which symptoms can be eased. While there are no specific studies on Ehlers Danlos syndrome medical cannabis could be effective in helping manage the treatment of chronic pain as a result of Ehlers Danlos. 

At Cantourage clinic, we offer a medically-led framework to provide health pathways for those suffering with Chronic conditions like Ehlers Danlos. To help sufferers take control of their health once again.

Our specialist physicians are experienced in assessing individual cases and helping to determine whether medical cannabis could be an effective option.

For more information on how Cantourage clinic could help, click here for more information.

If you are struggling with Ehlers Danlos, check out some charities below that can help provide support:

https://www.ehlers-danlos.org/

https://www.mindbodyeds.org.uk/ 

For more information on Ehler Danlos, check out our page here.
Cantourage Clinic offer specialist consultations for the following conditions.

- Pain

- Psychiatry

- Neurology

- Gastroenterological

- Oncology

- Palliative Care

To learn about how Cantourage Clinic could help, book a consultation today.

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