Ehlers-Danlos Syndrome

Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissues. There are 13 different types of EDS which can affect the skin, tendons, ligaments, blood vessels, internal organs, and/or bones. The most common form of EDS is Hypermobile EDS (hEDS).

What are the symptoms?

Symptoms of EDS may vary, depending on the form of the condition; however, all forms have some common symptoms, including:

  • Joint hypermobility
  • Stretchy skin
  • Fragile skin (that breaks or bruises easily)

The symptoms of Hypermobile Ehlers-Danlos syndrome (hEDS), along with those above, include:

  • Joint pain
  • Clicking joints
  • Dizziness
  • Fatigue
  • Loose or unstable joints that are especially susceptible to dislocation
  • Digestive problems
  • Problems with internal organs
  • Problems with bladder control

Cause and treatment

Ehlers-Danlos syndromes are genetic conditions which are mainly inherited from one or both parents. A person with an Ehlers-Danlos syndrome can only pass on the same type of syndrome to their children, but the severity of the condition may differ.

There is no specific treatment or cure for Ehlers-Danlos syndromes. Some treatments recommended for the management of EDS include:

  • Physiotherapy
  • Occupational therapy
  • Counselling and CBT
  • Regular scans, (to keep an eye out for internal organ problems)
  • Genetic counselling

GP’s and consultants can also prescribe medication, depending on the circumstances.

Medical Cannabis and Elhers-Danlos Syndrome

While there are no studies that focus specifically on Ehlers-Danlos Syndromes, medical cannabis treatment may be effective in helping with the management of pain associated with the conditions. Therefore, medical cannabis may be considered as an additional treatment option in cases where traditional treatments have been unsuccessful for pain management.

Our specialist physicians are experienced in assessing individual cases and helping to determine whether medical cannabis could be an effective option.

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